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A few days ago I was diagnosed with lyme.( On top of CFIDS which I have had a long time). What a relief. Now I can start to be treated for the lyme part of this. It is possible that lyme could have been a huge part of my condition all along. When I think of the extreme symptoms I have had for years-
I mean, really.
I have a brilliant doctor who I also consider to be a healer. We work deeply on all levels. I started working with him recently. He is an M.D as well as a naturopath. He spends time with me, listens to me, honors my intuition. He is extraordinarily intuitive, and a little wacky in a somewhat creative genius way. (He keeps trying to give me eggs from his chickens hahaha). But It's like the brilliance in him somehow meets the brilliance in me, and there is something that makes me feel like, ok....I can work with this person. I get this. I also consider him to be mature and to have depth which matters to me in my doctor.
I feel I have landed in the right place.
Being that I have been on this road for years, I have explored all aspects of medicine inside and out from the far (And I do mean far) edges of alternative practices to the most mainstream. I have seen people abuse the word "healer," thinking they knew more or were more advanced or intuitive than they actually were. I have met people who claimed that their way was the only way, doctors who blamed me for being sick when their medicine did not help me, doctors who told me that my symptoms were all in my head, people who dismissed me as being silly even when I could barely walk. I have known what it is to be misunderstood, judged, falsely critiqued and blamed. I have researched, studied, read, turned myself inside out looking for a cure. Pounding away at myself emotionally. Digging though every nook and cranny of my past. Happy childhood and all! Then, exhausted and no better, I have let go completely and quit trying. I have done this dance and many other dances. What shall we call this dance if it is a song?
Some of the things I have tried to help me include:
Chelations, acupuncture, herbs, supplements, massages of all kinds, mainstream meds, therapy, meditation, yoga, music, IV drips, chinese herbs, essential oils and on and on.
I think prayer, music and massage as well as working with a spiritual counselor have been helpful for me. Yoga is AMAZING when you can do it.
I have tried a zillion adrenal supplements. The adrenal supplement that is working for me now is a product I recently started. It is licorice root by Wise Woman Herbals. I write this in case it will help anyone else. I highly recommend it. My energy, while still low, is radically better than it was before I started this product. Amazing.
My favorite cleansing program is drnatura.com
It temporarily worked for me wonderfully, but then I believe it was not able to really work in the long run, because I probably have to be treated for lyme. But this cleanse could possibly be helpful for others.
The other thing that is actually amazing for me right now, is a full on antibiotic. Who would have thought? Certainly not me. But it is true. It is actually doing something big.
For a few weeks now, I have had a fever, and my blood has given me the feeling like it was on fire inside. My skin has been really hot. I have been having major inflammation and pain over my kidneys and pancreas and liver, and almost fainted last week. Whoohoo! Party down. I kept exploring emotional triggers or roots, but nothing was helping me on that path. I also had that liver pain several months ago and it was severe. Well, when the white of my eyes suddenly was not so white, I knew I was in an emergency. I felt like it was getting dangerous. I laid hands on myself and prayed over myself a few nights ago. And I mean PRAYED! I called in the angels and everybody! Claimed healing and drew it into me. I felt this tingling and sensation that healing was happening. My energy level came up and I slept that night. The pain and fire still existed. But to have my energy any higher at all was a major gift. Laying on of hands, prayer, and even sex- it's all good! It's all love.
The erotic lives very close to the spiritual. It's true. Read the Song of Solomon or poems by RUMI or poems by Rabia of Basra (c 717-801). "When God said, "my hands are yours," I saw that I could heal any creature in the world. I saw that the divine beauty in each heart is the root of all time and space."
What one of my healers has helped me realize is that everything is about connecting to the divine. Really connecting. Opening that channel. So I am doing that in new ways. It is exciting, actually. The key is to do it daily. Like eating. mmm....
Well, just a few days ago, my doc diagnosed me with lyme and he put me on emergency antibiotics. Thank God. I was freaked out, being I am always into natural things versus antibiotics, but felt I should try them. I have had some side effects, but also some amazing new changes for the better. Already the pain is less, the fever is lower, my vision is clear. I can drive again!
It's like a crack opened in the room. I have a little hope. I do. I have had my hopes dashed so many times that I cannot seem to gather up huge amounts of hope anymore. And it takes energy. But I know this much. A mustard seed can move mountains. I think God will forgive me for my doubts considering all that has happened. I know God doesn't abide by our rules or what our small minds can contain anyway. Thankfully there is such a thing as grace.
I am going with the flow right now. Open. Not pushing. Being with what is happening. Sometimes abandoning hope is also a good thing, and not in the sense of giving up, but in the sense of no longer pushing and pushing and fighting the illness, the suffering, the whatever it is. I have realized that positive thinking, as important as it is, can also at times be just a bandaid that one slaps on a wound when the wound really needs air. We spend so much energy sometimes fighting against what we feel and what our experience TRULY is, that we only create false mirrors. They eventually shatter or at the least, prevent us from living authentic lives.
So, I am here, looking into a real mirror. No judgement or expectation. Just looking.
I have judged myself long enough. How wonderful to let all I have been through in my life, just be. Not trying to fix or solve or judge or change or move something or even fight it. Just be. I notice that when something triggers fear within me, my symptoms feel worse. Not always, but sometimes. So let there be no fear except what I see and feel and then allow to float by like a cloud.
Remind me of this every 5 minutes.
The doctor said I might need to be on antibiotics for a few years. That may or may not be true. We will see. The path will unfold. Whatever that means, I am sure I will find out. I only have strength for this day! So that is what I will focus on.
I was thinking about how so many times I have tried to get people to understand what it feels like to go through this. But I can't. And sometimes people say and do the most hurtful things out of ignorance. This line comes to me- and I need to work on it. Maybe it can apply to you too and be something you can work on in your life in any and every situation.
"Forgive people when they don't understand you."
What about that. If we just take that one line. How would it change your life? I know it would change mine.
Afterall, every judgement we make is based on our own culture, individual experience, religion, beliefs and values, our own lens, traumas, wounds, unresolved conflicts, insecurities, environments.
It is enough for each of us to try and understand ourselves.
We have many tests in life. Homework. Thank God for recess. Can I have my recess now? Please?
Everything is about loving myself. Everything.
Loving myself in all stages, on all pages of life, during and through everything including that which I understand and that which I don't, that which I love and that which I hate. Loving it all. Fully and completely.
I took a walk last night. It was a beautiful summer evening. CT is finally starting to feel as much like home as NYC. It was great to smell the salt water and feel the breeze out here. I LOVE IT! I feel grateful for the healers I have surrounded myself with. The people in my life who love me and support me. I don't know what tomorrow holds. But I am here in this moment, and I am alive, and I can sit here and type this and I am OK. Maybe if you felt what I feel, you would not say you were OK. But it all depends on where you are coming from. When you hit the bottom and the bottom drops out, even the floor looks wonderful! Sort of OK looks pretty incredible.
I sent out a newsletter today to subscribers that my show is on summer break. I am thinking about the new interviews for the fall, the direction I want to go in. There is so much in the self help world that I disagree with and find harmful. I have gone deep enough into it that I sometimes want to just scream and yell at some of these people I come across! For God's sake go get yourself a Ben and Jerry's ice cream cone and quit thinking you can control your reality and everyone else's!!! hahah
But seriously, everyone on my show has been wonderful. I wouldn't have featured them if I didn't think so. My show is about possibilities, but its also keeping the stuff REAL.!! Sometimes people take things so seriously. Like this girl at the health food store the other day who was lecturing the person at the juice bar on how they cannot let the fresh wheatgrass sit out for longer than 20 minutes or it would turn bad. Ok, yeah it's better fresh. But It wasn't just what she said, it was her voice. I think she needs to hang with Nora Ephron. That woman's sarcasm just makes my day! (She wrote When Harry Met Sally).
Well, I am pretty HOT right now. So I have to end this rant. Final words....
I am learning that the things we want to change about ourselves are usually motivated more by love than hate. Yes?
So whatever it is, your body, your weight, an illness, your job, your self, a relationship with someone close to you- see what happens if you start with loving the thing you "hate." (This does not apply to abusive relationship situations. Those, you need to get out of).
But for other situations like the ones I mentioned, see where that love creates an opening and where that leads. Hate usually closes doors.
Love will open them.
Love is opening me. I don't know what they will look like, because there is no guarantee of physical healing. But it also might happen. Maybe my focus needs to be more on that love than on the form it takes in the outer world.
jo
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